What a great day. First it started off sunny and about 45 degrees, so I should have known it was going to be a good day.
I had a chest x-ray, a pulmonary function test, and then got to meet the whole crew at the clinic. Patrice is our nurse for both myself and Annika at the children's clinic, which is nice because then we will see her on a regular basis.
Dr. Nigel Paterson is a gem. He is an older doctor from "down under" With a wicked accent and a great sense of humour!
David and I instantly took to him. His bed side manner is amazing.
He was so positive about my cf, and we all agreed that seeing him once a year was enough as far as treatment for me. He believes that I will be around for many decades to torture my husband...lol! So as you can imagine, all my tests came back negative and clear.
He is booking an appointment with an ENT in London for me for my sinuses , but he seems to think they are not cf related. But we will leave that up to the ENT, since he has more experience in that area. Also he addressed my chronic constipation, talking about DIOS, but believing it is not that either. So he is booking a GI specialist appointment for me, but in the mean time he put me on Domperdione to stimulate my bowels. If it works, it is defiantly not DIOS. The funny thing is that medication also brings on breast milk and ups your production, so I guess I will be hunting for new bras, and Annika will be chug a lugging....lol. Oh well Dolly Parton is an okay look right???
So over all he was a sweet doctor, actually sat and talked to us for almost an hour. And he is the first doctor to listen about my sinuses and constipation and actually do something about it besides say "take a decongestant and a laxative."
Annika is doing awesome. She did culture staph again so we have her on Lavender inhalations again, but she is showing no symptoms of staph, so we are not treating it with antibiotics. We will start Lactobacillus again in a stronger solution.
The goat's whey has really been helping with weight gain. And our homeopathic solutions seems to be keeping her pancreas and lungs working as well as to be expected. Since starting them, we have decreased her enzymes slightly, because we noticed her not pooping, so now we have her on one cotazym 8 for breast feeding and 1 1/2 with other food. That is a big cut back! So we are happy. I got her hawthorn in, but I am going to wait on that to test the waters of these other supplements first.
Annika's doctors are all aware of her holistic treatments.
I have to do a speech for our volunteers function this Friday, so pray I keep it together. I wrote it in the car ride yesterday, and when I read it back to David on two different occasions, I broke down. The memories came flooding back. They are using Annika's montage at this dinner, so that will be nice.
