Saturday, June 26, 2010

London Surgery Went Well!

Well Annika's scope on the 22nd of June went well. No lesions, or ulcers. Bowel and stomach look great. Her stomach is climbing up her esophagus, so this could be causing the pain. Crazy weird. Dr. Bax put her on Pariet and we are hoping this will do the trick for the stomach pain she complains about EVERY day. They are not sure if she will out grow it or not????Time will tell. As for everything else. Annika blew a 141 FEV1 on her last pulmonary function test. Can you say crazy fabulous! I am proud of my girl!

Friday, June 25, 2010

In memory of Conner Jones, a new cf angel.

When God calls little children

to dwell with him above,

We mortals sometime question

the wisdom of his love

For no heartache compares with

the death of one small child

Who does so much to make our world,

seem wonderful and mild

Perhaps God tires of calling

the aged to his fold,

So he picks a rosebud,

before they can grow old.

God knows how much we need them,

and so he takes but a few

To make the land of Heaven

more beautiful to view.

Believing this is difficult still

somehow we must try,

The saddest word a mother knows

will always be "Goodbye."

So when a little child departs

we who are left behind

Must realize God loves children,

But Angels are hard to find.

-Origin Unknown

Tuesday, June 08, 2010

The Chosen Mother

The Chosen Mothers

by Erma Bombeck

Most women become a mother by accident, some by choice

and a few by habit. Did you ever wonder how mother's of

children with life threatening illnesses are chosen?

Somehow, I visualize God hovering over earth

selecting His instruments for progagation with great care and deliberation.

As He observes, He instructs His angels

to make notes in a giant ledger.......

"Armstrong, Beth, son, patron saint Matthew"

Forrest, Marjorie, daughter, patron saint Cecilia"

Rutledge, Carrie, twins, partron saint Greard."

Finally, He passes a name to an angel and says, "Give

her a child with cancer." The angel is curious. "Why this

one, God? She's so happy."

"Exactly," smiles God, "Could I give a child with cancer

a mother who does not know laughter? That would be cruel."

"But, does she have patience?" asks the angel,

"I don't want her to have too much patience or she will

drown in a sea of self-pity and despair. Once the shock and

resentment wears off, she will handle it."

"I watched her today," said God. "She has that feeling

of self-independence that is so rare and necessary in a mother.

You see, the child I'm going to give her has it's own world.

She has to make it live in her world and that's not going to be easy."

"But Lord, I don't think she believes in you," said the angel.

"No matter, I can fix that. This one is perfect. She has just

enough selfishness."

The angel gasps, "Selfishness? Is that a virtue?"

God nods. "If she can't separate herself from the child

occasionally, she'll never survive. Yes, here is the woman I will bless

with a child less than perfect. She doesn't realize it yet,

but she is to be envied. She will never take anything her child does for

granted. She will never consider a single step

ordinary. I will permit her to see clearly the things I see....ignorance,

cruelty, prejudice....and allow her to rise above them."

"And what about her patron saint" asks the angel, his pen poised in mid-air.

God smiles and says..."A mirror will suffice."

~walk softly and discover~