Saturday, July 29, 2006

fhiurhtuhfihfwei-Baby Talk!

Well Annika is done all her I.V meds( has been for 1 1/2 weeks now) She is cutting teeth like crazy, so fevers, cough and funky poops are a part of my daily life right now.
I will gladly take these "normal" childhood aliments!
Annika still is not walking on her own yet. She will walk all over using your pinky finger, and cruise along furniture, she will even walk back and forth between David and I on our king size bed, no assistance. But soon as we bring her on the floor, nope- forget it! LOL!
She is a stubborn little feisty one, hmmmm? Wonder where she gets that from.
She is meeting all her milestones, to the point that we call her Hurricane Annie- she leaves a path of destruction wherever she goes!
She is full of energy, and is way more mischievous than Parker ever was at this age.
She is a whopping 19 1/2 lbs. A big achievement for us. We need to keep the weight on her.
She loves her big brother, she is actually as tough as him. We warned him that this would happen.
For now all is well in the Hasson household.
David is still working, I am trying to get funding for self employment, and Parker starts school in the fall. As normal as I guess we could get. All healthy(knock on wood and say a prayer)
Hugs to all that care!

Thursday, July 06, 2006

A picc line! Small hurdles to jump

Well here we are all settled in London's Children's hospital. So we are on day 11 in hospital. Annika finally got her picc line yesterday. Thank God above! After being poked over 30 times in 8 days, she has had enough( as have I) with nurses and needles! Our cf doctor has been in and out of hospital for conferances, so she asked the head of peds to care for Annika, this is why we got the picc line on the same day he came to see her. We are trying to set up CCAC(home nursing care) for her meds . Her x-ray came back with apparent infection in the middle lobe, so I am so glad we pushed to be put on meds. Her cough is almost totally gone. And she is driving me nuts because she has so much energy.They are suspecting asthma or allergies, because she coughs heavier at night. And since we have been in a clean environment(that's what they call it, I would have to disagree) her cough has changed, so even though we know it will get better with meds, she is seeing a new peds allergist next week in windsor to get tested for cat and enviromental allergies. So at least that will be done and out of the way.So hopefully we will be home before the weekend. I miss my son, husband and home!Hugs to all, oh and sloppy kisses from Annika and Kimberly

Sunday, July 02, 2006

When will this madness end?

Well, we are on day 7 at Met hospital. And guess what? We are on number 8 failed I.V.; all of them have blown or kinked. She has had over 21 attempts at starting an I.V. as of midnight . They have resorted to giving her Tobi Injections and holding the other antibiotic for now. This I am not cool about. Every day we go without antibiotics is one more day we have to make up for.
So no pic line. Why, you ask?
Well, our first attempt at a pic line they gave her morphine and gravol to relax her. My little energizer bunny would wake up everytime they grabbed her arm. So we tried Adavan to put her to sleep, and she did the same thing. So the pic was rescheduled for Thursday instead with general anesthetic.
We had a rough night Wednesday because the drugs stoned her out and instead of knocking her out they did the exact opposite. So we had a strung out kid, that was very aggressive and rough. She started puking for hours in the evening, so Wednesday sucked....big time.
Thursday morning came and went, and we were still waiting for the pic to be put in, here I am starving my child because nothing by mouth until after the pic is in.
They have an anesthesioligist, a O.R nurse(they wanted to do it in the OR because of her reaction to the previous drugs and because of the CF), a radioligist and a tech on board, but the head of radiology cancelled it because he said he couldn't justify an hour of his staffs time for a pic line. Boy was I pissed, I have gotten patient advocacy involved now, and possibly a lawyer.
So it has taken how many man hours to pin my daughter down, kicking and screaming to put in a total of 8 I.V in 7 days that all failed, plus the additional torture of all the failed attempts.
She no longer has an I.V because there are no viens to use anymore. So this idiot has wasted how many nurses' man hours, plus a few more 1000$ dollars of government money for hospital stay, plus 2 hour drive for us now to London, and a 2 night stay there, plus a two hour drive back. Dave will be off work one day now......should I send the bill to this idiot.
It is crazy. there is no room in London so we are waiting for a bed, meanwhile Annika is going without treatment.
I am pissed.....just had to vent.
Did I mention I hate this hospital (the ward is great and the doctor is nice, but the rest of the hospital sucks)
I hate cf!
What good is it to have a PEDS floor in a hospital when I can't get treatment!
I will update you all.

Kimberly and Annika

The doctor just came in while writing this. There is no room in London or Toronto. They actually have a child here close to death and they have to send this child to Detroit. Crazy. So we are going to lightly sedate Annie and try a line again. The doctor is going to do it this time .
I am so frustrated, and crying because my little one should not have to go through this ever!
Gotta go, I will check back on emails later.
Love to you all!