It seems like forever since I posted here, and when I look at the date.....its pretty close to forever! Well to update everyone. Annika has managed to stay out of the hospital for a full year, her last admission was September of 2008. At that time she had her IV port removed because it kept giving her an infection in her blood. So regular needles for my little one now.
She is not to impressed about that one, but glad that she no longer has to have a port flush once a month. Her G tube has now shrunk down to a 1.5 from a 2, so the scar tissue has thined and settled. It has created a leak proof seal, which is a bonus! Annika has been put on peptamin 1.5- 3 cans a night, and a antihistimine to increase her appetite. All these things have made a difference. She is now 39"tall and weighs 35 lbs. For once in her life she is above the 25 th percentile for both height and weight! She rocks. We are so proud of her! She is a great kid, so compliant with her treatments and cf clinics. We put her on hyper tonic saline, and man does she ever cough up that yucky mucus. Hate to think that use to sit in her lungs! Annika has started school this fall, and she actually isn't the smallest one! YEAH! She loves school. And we love her!