It seems Annika has a cold that she can't kick. On the way home from their camping trip on Tuesday, Kimberly and Dave took Annika to the hospital in London because they had been unable to get her fever to break. Her abx were changed and she was sent home.
The past couple days Annika has started coughing a lot and is no longer able to keep anything in her tummy, including meds, because she coughs so hard she vomits. Today Kimberly took Annika to the hospital in London so they can rehydrate Annika and see if they can help her get better.
Thursday, May 25, 2006
Tuesday, May 16, 2006
Momma always said I was full of it!
I am slowly getting on my feet. It has been a rough one though! I was in Leamington for 5 days and London for two. I got more answers in London to explain my health problems, than I have here in Windsor area in the last 34 years. Crazy huh! Oh well things are healing, my lungs are clearing up and and my bowels are finally working great. I go 3 times a day now, I was lucky to go three times a month, so you can imagine the pain I was in. The thicker mucus from cf would clogs up my bowels. I am now on a prescription powder that I can mix in any beverage called Peg 3350, it is like the Miralax found in the states for the bowels. I had physio in London for my chest infection and I have been doing my vest daily, so it has made a huge difference! Everything is almost cleared up, I lost over 7 lbs of weight(crap) at the hospital...lol . We are heading up to the cabin( about 13 of us) this weekend for 4 days, so I will have a lot of help with the kids and the fresh air will do me good. Once I get my strength back I will feel like my sassy self. Both kids are doing fantastic. Dave has been an amazing help, and friends and family have been life savers. Anything helps during these times. It has been overwhelming. Gift certificates, cards, child care and meals. Its times like this that really humbles you. CF hit home this month. A reality check is what I needed to remind me to take care of myself also. Thank you for all the prayers.
Wednesday, May 10, 2006
An update on the family
Well everyone has been phoning or emailing to find out how we are all doing. I barely have time to pay bill(oh the dreaded bills) let alone answer everyone's concerns's. So I thought I would post to my blog and email out to everyone.
Calling all hands, calling all hands....S.O.S. We need help! S. O.S ! We need help now!
Annika just got over a chest infection, all that is lingering is a nasty running stuffed up nose. She was on steriods and keflex( still on keflex for 2 more weeks).This all started on my 34th birthday, April 27th. That night I came down with the same thing. The next day it felt like a ton of bricks on my chest and I went to see the doctor that morning.He put me on Avelon for 10 days. Great ,two cfers feeling like crap at home. Well after getting through the steriods( Annie was hyper...I MEAN HYPER) things seem to settle down for her, but I got worst. I started vomitting and back pain 4 days later. On Monday I was getting fluids via IV at our local ER. I proceeded to go back to the ER 3 days in a row, where they took xrays and blood, and urine and admitted me with pnemonia and kidney infection. So now I am coughing and puking up green, yep green which is bile! Yum!
They blew three IV ports/veins. And proceeded to poke me for an IV , 11 times. The twelth one I refused. It is a small hospital and they don't do picc lines. Know I go to Windsor for IV from now one. I was discharged 2 days ago, and feel like crap. I am coughing worst, stuffed up horribly and my stomach looks 6 months pregnant. The nurse practitioner in London thinks it is not a kidney infection, since blood is clear , but a bowel blockage(haven't had bowel movement in 7 days, and a really good one in weeks). So she is talking to the cf doctor today to try to get me admitted in London to clear out my bowel and chest.
So we need prayers! Lots of them!
We need some people to help with the kids! Annika needs extra care, and I am willing to break them up for the time I am in the hospital. I need women to start pumping milk for freezer please!!!!!!!!
Call Amber Joy at 726-6450. She will set things up between everyone(she was really good at this in the past)I hope she is fine with this....lol!
Meals would be appreciated. Any help!
Please
Love you all, and God Bless. I will keep you posted from the hospital, or Amber Joy will post on Annika's blog.
Hugs
Calling all hands, calling all hands....S.O.S. We need help! S. O.S ! We need help now!
Annika just got over a chest infection, all that is lingering is a nasty running stuffed up nose. She was on steriods and keflex( still on keflex for 2 more weeks).This all started on my 34th birthday, April 27th. That night I came down with the same thing. The next day it felt like a ton of bricks on my chest and I went to see the doctor that morning.He put me on Avelon for 10 days. Great ,two cfers feeling like crap at home. Well after getting through the steriods( Annie was hyper...I MEAN HYPER) things seem to settle down for her, but I got worst. I started vomitting and back pain 4 days later. On Monday I was getting fluids via IV at our local ER. I proceeded to go back to the ER 3 days in a row, where they took xrays and blood, and urine and admitted me with pnemonia and kidney infection. So now I am coughing and puking up green, yep green which is bile! Yum!
They blew three IV ports/veins. And proceeded to poke me for an IV , 11 times. The twelth one I refused. It is a small hospital and they don't do picc lines. Know I go to Windsor for IV from now one. I was discharged 2 days ago, and feel like crap. I am coughing worst, stuffed up horribly and my stomach looks 6 months pregnant. The nurse practitioner in London thinks it is not a kidney infection, since blood is clear , but a bowel blockage(haven't had bowel movement in 7 days, and a really good one in weeks). So she is talking to the cf doctor today to try to get me admitted in London to clear out my bowel and chest.
So we need prayers! Lots of them!
We need some people to help with the kids! Annika needs extra care, and I am willing to break them up for the time I am in the hospital. I need women to start pumping milk for freezer please!!!!!!!!
Call Amber Joy at 726-6450. She will set things up between everyone(she was really good at this in the past)I hope she is fine with this....lol!
Meals would be appreciated. Any help!
Please
Love you all, and God Bless. I will keep you posted from the hospital, or Amber Joy will post on Annika's blog.
Hugs
Tuesday, March 28, 2006
Kimberly's trip to London
What a great day. First it started off sunny and about 45 degrees, so I should have known it was going to be a good day.
I had a chest x-ray, a pulmonary function test, and then got to meet the whole crew at the clinic. Patrice is our nurse for both myself and Annika at the children's clinic, which is nice because then we will see her on a regular basis.
Dr. Nigel Paterson is a gem. He is an older doctor from "down under" With a wicked accent and a great sense of humour!
David and I instantly took to him. His bed side manner is amazing.
He was so positive about my cf, and we all agreed that seeing him once a year was enough as far as treatment for me. He believes that I will be around for many decades to torture my husband...lol! So as you can imagine, all my tests came back negative and clear.
He is booking an appointment with an ENT in London for me for my sinuses , but he seems to think they are not cf related. But we will leave that up to the ENT, since he has more experience in that area. Also he addressed my chronic constipation, talking about DIOS, but believing it is not that either. So he is booking a GI specialist appointment for me, but in the mean time he put me on Domperdione to stimulate my bowels. If it works, it is defiantly not DIOS. The funny thing is that medication also brings on breast milk and ups your production, so I guess I will be hunting for new bras, and Annika will be chug a lugging....lol. Oh well Dolly Parton is an okay look right???
So over all he was a sweet doctor, actually sat and talked to us for almost an hour. And he is the first doctor to listen about my sinuses and constipation and actually do something about it besides say "take a decongestant and a laxative."
Annika is doing awesome. She did culture staph again so we have her on Lavender inhalations again, but she is showing no symptoms of staph, so we are not treating it with antibiotics. We will start Lactobacillus again in a stronger solution.
The goat's whey has really been helping with weight gain. And our homeopathic solutions seems to be keeping her pancreas and lungs working as well as to be expected. Since starting them, we have decreased her enzymes slightly, because we noticed her not pooping, so now we have her on one cotazym 8 for breast feeding and 1 1/2 with other food. That is a big cut back! So we are happy. I got her hawthorn in, but I am going to wait on that to test the waters of these other supplements first.
Annika's doctors are all aware of her holistic treatments.
I have to do a speech for our volunteers function this Friday, so pray I keep it together. I wrote it in the car ride yesterday, and when I read it back to David on two different occasions, I broke down. The memories came flooding back. They are using Annika's montage at this dinner, so that will be nice.
I had a chest x-ray, a pulmonary function test, and then got to meet the whole crew at the clinic. Patrice is our nurse for both myself and Annika at the children's clinic, which is nice because then we will see her on a regular basis.
Dr. Nigel Paterson is a gem. He is an older doctor from "down under" With a wicked accent and a great sense of humour!
David and I instantly took to him. His bed side manner is amazing.
He was so positive about my cf, and we all agreed that seeing him once a year was enough as far as treatment for me. He believes that I will be around for many decades to torture my husband...lol! So as you can imagine, all my tests came back negative and clear.
He is booking an appointment with an ENT in London for me for my sinuses , but he seems to think they are not cf related. But we will leave that up to the ENT, since he has more experience in that area. Also he addressed my chronic constipation, talking about DIOS, but believing it is not that either. So he is booking a GI specialist appointment for me, but in the mean time he put me on Domperdione to stimulate my bowels. If it works, it is defiantly not DIOS. The funny thing is that medication also brings on breast milk and ups your production, so I guess I will be hunting for new bras, and Annika will be chug a lugging....lol. Oh well Dolly Parton is an okay look right???
So over all he was a sweet doctor, actually sat and talked to us for almost an hour. And he is the first doctor to listen about my sinuses and constipation and actually do something about it besides say "take a decongestant and a laxative."
Annika is doing awesome. She did culture staph again so we have her on Lavender inhalations again, but she is showing no symptoms of staph, so we are not treating it with antibiotics. We will start Lactobacillus again in a stronger solution.
The goat's whey has really been helping with weight gain. And our homeopathic solutions seems to be keeping her pancreas and lungs working as well as to be expected. Since starting them, we have decreased her enzymes slightly, because we noticed her not pooping, so now we have her on one cotazym 8 for breast feeding and 1 1/2 with other food. That is a big cut back! So we are happy. I got her hawthorn in, but I am going to wait on that to test the waters of these other supplements first.
Annika's doctors are all aware of her holistic treatments.
I have to do a speech for our volunteers function this Friday, so pray I keep it together. I wrote it in the car ride yesterday, and when I read it back to David on two different occasions, I broke down. The memories came flooding back. They are using Annika's montage at this dinner, so that will be nice.
Monday, March 20, 2006
The Great Strides Walk video-A Dance with Annika
Please take the time to watch this little video. It has beena year in the making...lol. Thank you for all your time and help. Join us at The Great Strides walk this year.
Great Strides
Sunday, May 28, 2006, at 11:00 a.m. at the Ganatchio Trail (starting at Sandpoint Beach)
We will be hosting a FREE BBQ, kid's activities, a magic show, face painting,
scavenger hunt and balloons.
Sunday, May 28, 2006, at 11:00 a.m. at the Ganatchio Trail (starting at Sandpoint Beach)
We will be hosting a FREE BBQ, kid's activities, a magic show, face painting,
scavenger hunt and balloons.
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