What a great birthday!

Well my 35th birthday was celebrated at the National Canadian Cystic Fibrosis Conference in Cornwall this weekend. To start things off , at introduction, over 150 people sang happy birthday to me. At lunch time, the board allowed me to view Annika's Great Strides video on two theater size screens. So her video was shared with hundreds of people. ( there is a link to a similar version below). I got to spend some time with Heather Cariou , author of Sixty Five Roses, a sister's memoire. Annika said " Happy Burp-day mommy" ( her version of Happy Birthday) to me on the phone. The news was offically released about the cepacia vaccination, and the phase three trails on the vaccine, and to top things off at social hour in the hospitality suite....I put a challenge out there for all the people attending the conference to dig deep in their pockets for spare change and donate it to the Great Strides Walk. I raised $502.50 that night from spare coin. How will I ever top that birthday!

Non Profit status for an Angel's Wings

Yes we are working on it! We got the forms back with suggested add ons. So we are working on our status. Mean while the local rotary club has offered to accept any vest donations on An Angel's Wings behalf, and issue a tax receipt. How kind is that? So we can start accepting donations, and our clients will receive a tax receipt for their kind donation. Welcome to the world of giving. Let's make some families happy!
www.anangelswings.com

Our trip to Sick Kids March 30, 2007

Hello Everyone,
I haven't had a chance to respond to anyone's posts, so please forgive me, I pray and hope everyone will be healthy and heal. For those who are not sick.....rock on!
Annika had her appointment at Toronto Sick Kids on Friday....we are staying in T.O visiting friends, and having some well deserved family time!
Well the results. Her chronic cough , according to the respiroligist and her x-ray are probably ashama linked, not cf. Her xray is congested, but no scarring(yeah!) So we are on prednisone for 5 days to see if it makes a differance. Her lungs are not a real concern to them right now, her size is. Which brings us to the issue of our visit to Toronto in the first place.
We are doing more fecal studies. We did blood on her and myself for celiacs disease. They suspect that we both have it. On top of cf.....boy did we win the disease lottery or what. A simple blood test will send us in the right direction with that study. If our blood comes back positive, then they to a biopsy of the deodeum to secure a positive result. Our diet will be even more fun then....lol! I shouldn't be laughing, but man....what else can I do?
So this is where we start first. For the next month we do the increased enzyme thing , like we have been doing already. She has already gained a pound in 3 weeks with that. If she starts to fluctuate with her weigh again then we do one month of Zantac to raise her ph level in her stomach to aid in digestion. In two months, we have to go back to Sick Kids. If things don't change then, with these two options, a GI Tube will be the next result. I guess they don't like doing them until they ruled out all other things( which I feel happy about) So in the long run we got answers, met the best GI doctor in Canada, and to top things off, he invited me as an adult to see him in Toronto, and for him to try to help fix my GI problems. He suspect(Quote) that my GI problems are not cf related, but possibly celiacs....we will find out soon.
So I am off to play with the kids, and hubby and I are going on a subway ride with them to our friends house for dinner tonight. We will be heading home tomorrow to start a new fecal study at the end of next month. I have to stop breastfeeding for 3 days, so it will be easier to do this when I got to Cornwall for the cf conferance, and I will be away from her anyways. Weighing food, liners in diapers, oh fun. But if it helps them decide what action to take next with her GI issues, than it will be worth it.
Talk to you later.
Kimberly in the big city( with no sex) lol!

I turned TWO !!! March 13, 2007

Well my little one turned two. My, where did the last two years go. Between raising a family, working, and hospital visits....two years flew by. So my little girl turned two, and she is already acting like a teenager. It must be a female thing....lol. Oh well, I will take whatever I can get. She definately is the apple of one of my eyes, Parker owns the other.

The Hasson's Walk for a Cure! Join Us!

Hello Loved Ones!
Just a update on our family, and our fight with "CF:
Recently we have been advised that Annika will likely need a feeding tube (G tube) to help her start gaining weight. She has been slowly losing weight for many reasons. First and foremost , Kimberly has been very ill over the last six months. She has been admitted into local hospitals over 5 times , for a minimum of 1 week each stay. Annika missed her mommy, and even though she could out eat her big brother Parker , she still needed constant prodding to eat more. And while she loves her daddy and family and friends very much.....I guess only mommy had the magic touch for cooking her favorites?
Annika has had a constant cough for over 7 months that has not responded to treatment, so all that coughing burns calories. Calories Annika can't afford to loose. Annika loves to eat.....she really loves different flavours and "mm mm" and "aahhss" over so many things. But no matter how many calories she seems to eat, it doesn't seem enough. And with cf, weight gain is a huge issue when it comes to fighting an infection. We will be meeting with the whole cf team at Toronto Sick Kids on March 30 to get the final opinion on the matter. Other then those few issues, Annika is a growing, happy, sassy....did I say sassy little girl who loves her family( especially if she can beat up Parker or pappa) She is the apple of our eye, along side her very loving and supportive big brother, Parker.
Kimberly is working hard over-coming bowel issues, a frequent lung infection and kidney problems. She is on the road to recovery.
David is working hard re- training for a future new career. He is enjoying time with his wife and children( some days more than others....lol)
This time is of the year is very important to us. May is Cystic Fibrosis month, and during this month we do a very important fund raiser/
I'm participating in Great Strides.

You can help support me by making a secure on line donation using your credit card. Click on the link below:

https://secure.e2rm.com/registrant/StartUp.aspx?SID=1385348


If you would like to join our team , please register. Our team name is Annika's Dancers. Last year we raised $2000.00, we are shooting for more this year. Help us reach our goal!
For more information on how YOU can participate in Great Strides, please visit us at www.cysticfibrosis.ca/greatstrides

Any little thing you can do, please remember every little penny matters. Let "CF" stand for "Cure Found"




God Bless Everyone,
Love David,Kimberly, Parker and Annika Hasson