Tuesday, December 20, 2011

Just another day

Sometimes I just have to shake my head and think " Just another day?" Often, I think people around me take for granted the gift of good health. You know that mythical thing our family struggles with...lol. We have all been passing around a cold bug for the last few weeks...back and forth, round and round. Parker, Dave, Mom and dad all processed it with a stuffed up nose and a few yucky days. Mine went right to my chest, as you very well know if you read this blog. Annika had been dealing with this bug for about 10 days now, just complaining of a snotty nose, nothing really coming of it, until last night. I should have know that something was coming of it after doing her saline nasal rinse, she complained of a sore ear. That night a fever developed and she was up half the night with a earache. This morning , still a low grade fever and her ear is killing her. I kept her home from school, and put a call into her cf clinic. We both made pinkie swears to stay out of the hospital for the holidays. Christmas is only days away....the countdown has begun. Let's pray her doctor calls something in to do the trick! Why would today be any different from any other day....after all it is just another day!

Friday, December 09, 2011

A fire and a good blanket

If you ever had a chance to sit and watch a roaring fire with a warm blanket on your lap, I am sure you can agree there is nothing like it. What makes it even better is when you are chilled to the bone and not feeling up to snuff. The flames have a calming effect, and the heat is a welcomed band aid.
I woke up today, for the first time in weeks , with the weight off my chest. I actually feel I can take a deep breath again. It is so refreshing, and honestly long over due. The medications are finally kicking in, I have been doing nothing but resting. Which if anyone knows me, is not an easy feat! But I have listened to my doctor, my family, my friends, and nurse Annika. Today is the first day I have been out of my pajamas, and will admit that I was not smelling so good, so a shower was a treat today. I did a load of laundry, packed my son's bag for cubs winter camp, and just snuggled with my mutts. I received several emails, a few phone calls, two visits, one special delivery from one beautiful woman ( wink, you know who you are!) I just got surprised from another friend. Her children are in a home school group, and a cute Christmas card came hand  signed by all the kids,delivered with some hand made truffles. Thank you madam, and tell your kids thanks for bringing it over. I truly value all the love and concern I have experienced over the last few days. God is grand! Thank you Lord for the support you offer, and for your gracious healing hands. Thank you for warm fires, fuzzy blankets and loving mutts! I could do without the sloppy kisses that come with them though. Amen.

Wednesday, December 07, 2011

A gliche in the silver lining

Yesterday I received the lowest, or the lowest blows. We are talking gut wrenching, heart breaking reality. I was given the news yesterday that I had cystic fibrosis. Now you may be wondering " Am I missing something here, ? " Yes, six years ago I sat in front of one of the leading doctor's in cystic fibrosis care in Canada, while she explained to me" Genetically you have cystic fibrosis, but from a medical stand point, you are symptom free, and we will only monitor your care once a year for statistical purposes. Just for the benefit of clearing things up, to this date my lung function has been amazing, I had full pancreatic function, and besides having some bowel issues ( which only one doctor would admit it was a complication of cystic fibrosis) I was symptom free.So I had cf, but I didn't have cf. Year after year I would go to my cf clinic. I would do my bone density scan, fecal studies, blood work, x-rays, and my pulmonary function tests. All would come back wonderfully, with averages above average even for a "regular" woman of my age. I turned 39 this year, and my body started to fight me in so many functions. I noticed colds hung on longer, my bowels were too frequent ( 4-6 a day) and my belly pain was horrible. I started to pay more attention to my stomach ( besides the fact that it forced me to notice with the worshipping of the porcelain queen) I pretty well chalked this up to my body healing from gallbladder surgery and just being run down. At Annika's appointment last week I had advised the doctors to take extra care in washing their hands, as I have been fighting a cold for about 4 weeks. The whole family had it, and I joked that I am sure Annika will come down with something soon.
Well after all my yearly tests at London, I was ushered into a clinic room, the norm for my yearly clinic. The difference was I was feeling like crap. I couldn't get warm, and I just felt generally weak. I couldn't believe how this cold got the better of me. It was getting really frustrating from my point of view, and I voiced my concern to my nurse. Well after a kind, but stern tongue lashing, I was advised that from blood, xrays and PFT's, the evidence was there that I had a chest infection. I was also told my pancreatic function was gone, and this was the explanation for my bowel issues.
Do you know what a brick to the side of the head feels like.....I sure as hell do! My new doctor came in. A very kind gentleman that stated he understood that I have been told alot in the last few minutes, but from his point of view, I was full blow cystic fibrosis status......WHAT, WHAT, WHAT????? He wanted me to start seeing him every three months. The dietitian and the physiotherapist would be in to go over my care. They wanted a glucose tolerance test, because my blood showed CFRD. My first reaction to this was shock! All these years, and all the  remarks from doctors stating this was just a formality, I wish all my cf patients were as easy to care for as you. So after a 5 hour appointment and a bag full of new prescriptions , I made the journey home to process everything with my family.
All these years, under the belief that I was one of the lucky ones. I was untouched from this silent stranger cf! I HATE CF! I HATE CF! I HATE CF!
All these years I have fought for my daughter's cure, my daughter's control, my daughter's future. Never knowing I was fighting for my own.
All these years of misleading me, of no treatment, of no physio!
So now my lung function is half of what it was 6 years ago. Now my pancreas doesn't work, now I have to do physio everyday like my child. I am sure there will be many that will read this and think  " Welcome to my world!" but what they don't understand is I was told by many cf doctors, your mutation in little lung problems and full pancreatic function.
WTF?
I asked my doctor......why was I told this? Why was I given false information? Why?
I had access to a vest for the last 6 years, yet my old cf doctor told me there was no need. Proof was in the history....I went 33 years without knowing I had cf. Why should I change anything now.
The doctor replied" Your mutations are in the top 32 mutations tested for. From our research , less that .08% of people with cf have my genetic makeup. So that limits the doctors and their resources. Of those .08% of the cf population, I am one of the oldest with this makeup from what he can see. Most are infants or teenagers. Of all those with my mutation, none are showing any symptoms of cf. So I guess in a way I am a matriarch....lol. Oh lucky me! He then went on to say it is possible with these mutations, that cf doesn't present itself until a person's more mature years. I guess a way of saying I am old!
So basically he will use my information , to place in the cf data banks, so future cf patients with my mutation will receive preventative care. His fear is that in 6 years my lung function has decreased 50%, he doesn't want that trend to continue on. He doesn't want me on the transplant list in 6 years.
Annika was diagnosed, I went through all these. I know next comes depression, mourning what once was. But the best of all after all that comes the fight. The fight to prove all statistics wrong! This cf messed with the wrong bitch!
To all reading this, give me some time to process this, give my family time to process this. Thanks for your support. So now my silver lining is gone. Truth be told, I always had a thing for gold anyways~

Monday, December 05, 2011

A visit to Children's Hospital

This past week we just had a cystic fibrosis clinic. I always dread these clinics. Often I am reminded of my failures. My failure to fatten my child. My failure to be there as a doting mom, because often my health is very poor. My failure to fix my child's every need. Even though my head tells me these failures are out of my control, my heart still aches when she fails to meet the normal requirements of her health. I know I have no control over the infections she gets, I do everything to avoid them. Keep a clean house, stock my fridge with fresh foods, keep my children active, and give them the appropriate medications and vitamins. Still a part of me holds myself liable for a poor PFT, or for a virus, or poor weight gain. The mom in me tells my head.....hook her up more often to her G-tube, do more physio, make better , nutritious food. I beat myself up for all her bodily failures. I cringe in the parking lot every cf clinic. This clinic we went and did her PFT's first. Last visit she blew an 80 FEV, this time she blew an average of 100.....100%.....perfection. Her xrays were spot on, and her blood was great. Her vitamin levels where right on. We are just waiting for her sputum results. For the first time in a long time, I felt good leaving her clinic. I half expected it to be a joke, I truly was waiting for them to chase us into the parking garage to tell us they mixed up the test results. But here we are after a nice, quiet weekend, still no call from London. Still functioning . Still relishing in the results. Annika's lung function is amazing, all signs of infection in her blood are gone, she grew 2 cm and gained 3 lbs since her last visit in August. God is good.

Thursday, November 24, 2011

The rat race begins

We are off today to do blood work with Annika at Met hospital. When we left the hospital on Monday,  they booked an appointment for Annika in out patient to do a blood test to see if her white blood cells have gone down. If they have not gone down, then they will be admitting her tonight for more IV meds. I hope her results come back with positive results.

Sunday, November 20, 2011

Ghost's Galore

So before you start to read this, no I am not high on drugs! Lately the night shift has been acting crazy around here, and I started to ask why. I come to find out that the girls have had some strange encounters of the paranormal kind on the third floor. This shocked me, because often where ever I go, I experience weird things. Like the hairs on my body standing up, extreme temperature changes, whispering, my name being called, flashes out of the corner of my eye, and a general uneasiness in certian places. For obvious reasons, cemeteries always do this....but this peds floor has always sent me into a weird state of mind. I felt it back to when the 3rd floor was labour and delivery. I remember often walking down a hall feeling watched, and during one labour a mom requesting to change rooms because an uncontrollable state of depression and severe loss. She was crying that she was going to loss her baby, she was going to have a stillborn. Once we moved her across the hall, her whole attitude has changed. At the beginning of the week I had asked my nurse where the lady singing lullibies in room 3218 was? I saw her rocking in a chair late one night. Iguess this comment from me is what started the uneasiness. Supposibly room 18 has had a women presence in it for as long as nurses can remember. Often a middle age women is seen in there crying. I described the women to the nurses, and I guess it fits the description. If they can avoid it, they don't put anyone in 18, especially babies, because the room bells, and lights go on and off when there is an infant in there. I told them I saw this same woman in my doorway the other night when Annika was really sick and having 40.6+ fevers. They said often when a child is really sick, people ask about the lady watching their child. I have had many visits from " people" and I never felt scared by this women, I just felt like she was concerned for Annika. I guess there has been alot of activity on this floor since annika and I have been admitted. I have talked to the nurses about our families history with "visits". I had to humour them and explained my experiences on this ward. So I guess it can be said, I feel safe here, knowing that not only am I watching over Annika. But she has another beautiful presence watching over her as well. The funniest thing is I haven't seen her since Annika's fevers have broke. I guess we are in the clear, from all dimensions.....lol

Friday, November 18, 2011

I am just one of those mom's

I sit here awake in an uncomfortable hospital bed in the same room as my daughter, staring at the clock ....focusing on 3:03 AM. Yep, I am just one of those moms who won't leave the side of their sick child. I relate myself to a mother bear. For example, this morning at 6:30 am two white coated lab techs approached my offspring, searching for blood. Instantly , I awake on defense. I bark out orders....which I am sure to these innocent employees of Met hospital...sound remotely like the growls of a mother bear roaring warnings to the approaching danger to her cub. I growl out warnings of protection...stating that our room is  safe room, and there are no needles allowed in our cave. I growl out protests of the early morning visit of mangled steel and plastic, demanding to see our nurse to confirm it is 100% necessary to stab my child for the liquid ruby gold? With returned growls from the lab techs, stating it is their job and they have orders to withdrawal blood. Now anyone who has ever watched National Geographic has learned never to step between a cub and her mother.....apparently these fine employees of Met have not had time to browse the public networks of great educational nature series. After requesting EMLA for my daughter ( thus to freeze the intended needle insertion site) and time to prepare my cub mentally for a needle....the lab techs still tried to get their way. With a massive swipe of my bear claws, and a growl that could wake the dead, they wisely retreated to venture into other caves, until our EMLA cream had time to take effect. A wise move on their behalf. This mother bear now slowly nudged her cub from slumber, and prepared her for what was to come.
After a short venture from our cave, the humbled lab techs returned, requesting access to my child....in which I allowed with my supervision. Two separate pokes, and the blood cultures, CBC's and medication levels where off to the lab to be processed. I thanked the techs for coming back , but reminded them that there is no other danger worse than that of a mother bear protecting the welfare of her cub.
Now you maybe reading this, thinking......okay Kimberly , obviously you have gone a little heavy on the drugs.....but in reality, most of the time I feel like a mother bear. At the hospital I am constantly patrolling my territory looking for dangers. Those may be  viruses, bacteria, fevers, or contaminants. I am always swiping my claws in the air to remind strangers that they are not in charge of my cub....but I am, and ultimately I will do what is best for her, at any cost. I always have my hackles up, preparing to stand my ground, and the best part of being a mother bear is the snuggles and bear hugs I get to share with my cub...because these seem to have the most healing effect on her.A mother bear will stop at nothing to protect....I am just one of those mom's.
So in all seriousness, I am concerned about Annika. After the morning blood tests, she complained that she was tired and went back to sleep. She continued to sleep until 2pm. When we got the results from the morning lab, her white blood cells are crazy, her hemoglobin is really low, her albium level is way of and she is showing signs of infection....but the puzzling thing is where, and what is causing it. The fevers have broke today, but she is exhausted. Why , we do not know. So all day long we hung out in our cave. Thanking the Lord for modern technology and my big fish game account. We snuggled and giggled, and share the most important thing together....TIME. So the plan for Friday is more blood tests, and more waiting.
Roar....Roar....Roar!

Tuesday, November 15, 2011

Crab legs denied!

Sunday November 12, 2011. We were lucky enough to get our hands on four Spitfire tickets. We decided to go out and catch the game together as a family. It has been a really long time since we did a family outing. The kids were excited, and even though my body was feeling a little run down after several weeks of poor sleep and bowel spasms.....I was really happy about getting out with Dave and the kids. We got to the game, and started to relax ( relax my vocal cords from shouting and supporting the Spits in their game.....lol) The games was awesome. 8-0 for the Spits . Through the whole game Parker was his usual crazy man. Always dancing when the songs would start playing. Annika and him usually try their hardest to get on the video tron. Annika just sat through the whole game, happy, but uneventful. Usually I am telling her to calm down, because she really gets into the dancing and cheering. This night was different. She complained that she was freezing ( even with her and my jacket to cover her). She also mentioned several times that her arm with the picc line in it was killing her. The start of a downward spiral. We asked the kids where they wanted to eat as a treat for dinner. After many attempts to try to convince Dave that Sushi was what he was craving, they finally decided on Red Lobster , because Parker had never been, and desperately wanted to eat there. As the game went on ,Annika shook through each period, and really was way too quiet for my liking.At the end of the game, on the way to the car, Annika begged Dave to carry her because she was really tired, nauseated and her arm was really hurting. Once in the car I hooked her up to one of her I.V meds, and we headed to Red Lobster. She really expressed how tired she was, and Dave asked if it was really a good ideal to be eating out, that maybe we should get take out and get home. Annika objected. She said it wasn't fair for Parker that he missed out on Red Lobster because she wasn't feeling 100%. So we agreed we would eat, than head right home. Both our kids LOVE seafood, crab legs being one of their all time favourites. Annika continued to complain about being cold, and hurting. She had 4 bites of crab......literally. I felt her cheek and realized she was burning up. We paid the bill and headed over to Walmart to buy some Tylenol.....I wanted a dose in ASAP. When we got home, we completed the meds, did therapy and put the kids to bed. Annika and Parker we out cold in minutes. At 11pm , Annie was due for another round of I.V meds, and when I took her temperature it was 100.9, so I gave her some ibuprofen. I called Met hospital peds department and talked to one of her nurses from her last admission two weeks ago. She direct me to take Annika to Leamington hospital if she doesn't get better within an hour, because Met's ER was crazy busy. At 12:30, an hour and a half after giving her Motrin, and 3 hours after giving her Tylenol her fever was up to 102.6. I decided right then and there to skip Leamington and head right to Met. I knew with the climbing fever and arm pain at her picc site, that she would be seen right away. Within 10 minutes of seeing triage, she was brought in to be seen by a doctor. They took blood from the picc, and set up a alternated IV site and took a blood sample from there also. They sent them away to culture for a bacteria in the blood. They also swabbed her, and took urine. In minutes the doctor was back letting us know we were being admitted. Her temperature was up to 104, and her urine was full of infection. The doctors were more concerned about the swelling of her picc arm. They gave her Morphine for the pain, only to her her react to it by having stomach spasms( not vomiting) but extreme stomach cramping and pain. She screamed for a straight hour. It was insane. We didn't get up to our room and in bed until 5 am. We finally both fell asleep by 7am.
I was up only 2 hours later because of my bowel spasms, and my mom had arrived to relieve me so I could go home to pack everything we would need for a weeks admission. The doctor stressed that we would be here at least a week. She ordered a chest xray, to check out her lungs and to confirm the placement of the picc line. They also did an ultrasound of the picc site, with plans to do a dye xray to check for leaks. By this morning Annika's arm pain was down to her hand and up to her armpit. I went home packing, while my mom never left Annika's side. I managed to go over to the kids school. I met up with Parker to bring his lunch and to explain what was going on. I needed to hug him, kiss him, and to tell him I loved him. I need to just hold my son, the kid who always get less attention due to this PIECE OF CRAP disease! He assured me he totally understood, that he hoped Annie got well, and understood that I wouldn't see him this week. Parker is going up with Dave hunting, and we have friends and family staying with the animals at home. He told me he would take lots of pictures, and promised to do his homework. When did my baby grow up? He was really excited about spending time with his dad, one on one, and spending time with Dave's family at the cabin. PARKER IS ONE AMAZING KID! God truly blessed me with an awesome son and daughter.  He goes through so many unfair things because of CF!
When I got back the the hospital, the doctor came in to see me. She told me they found a blood clot. We needed to remove the picc line, and to monitor her closely. She was concerned about the fever, and wasn't sure if the UTI was causing it, because Annika was not complaining about her peeing hurting her. She advised us that her blood cultures would take at least 48 hours, and that Annika needed to finish out her last week of her IV meds. She then told us she was adding another antibiotic that was a broad spectrum, to cover all the cards so to speak. We are treating blindly as of date, while we wait for the cultures. As I type her fever is 40.6.........insane. That is 104 for those not used to metric. I made a trip to the ER tonight, because my bowel was spasming like crazy, so I need to get it to calm down. So here we are stuck in a medical prison until Monday the 21st. Anyone wanting to visit....BRING ANNIE CRAFT KITS, and both of us tasty food. Did I mention I HATE CF?

Wednesday, November 02, 2011

Goodbye Facebook

My husband tried to preach the negatives of Facebook to me, and I fought him with the positives. Yet when I sat back and thought hard and long about it, I realized what was most theraputic for me Facebook tookaway from me. Writing my feelings, without holding back, and worrying about who I hurt in the process....well truthfully was the most healing for my soul. Facebook made it so easy to post about my issues with life and cystic fibrosis, that I stopped posting to this blog. I neglected the one thing that helped me cope. While I relied on false friends who pretended to be sympathetic, and caring....truthfully the friends that really cared took the time to call, write or email me. Even better, those who really cared visited us all those times in the hospital. I have a lot of anger right now, and that anger is bubbling up and invading my life. My husband , kids, family and friends notice I am sure. I am focusing on things outside my family and faith, and have been worrying about what others think of me. When those individuals would never lift a finger to help me. They judge me, expect me to be a sweet, loving individual to them. When behind my back they push the dagger in farther and farther. It breaks me apart at my very soul. I am becoming someone I don't reconize at all. Anger and frustration is eating away at me, little by little. I thought I was the type to bend over backwards to help others. Always calling, lending out my things, teaching for free, providing support. But all the while , as I am struggling to exist, doing 7 IV's a day so our daughter can have a normal life, not one of these individuals have offered to help. Or to call, or to offer a kind word. They know what our family is going through....yet all they offer is critisim, and gossip. I find that Facebook just fuels this. Silly little comments...and you sit back and look at a status line and wonder....Is that directed at me? And how is this benefiting me? or my family? I know who I was, and what I have become. I have lost the real me....the mother, daughter, friend, and wife I want to be. I hate looking in the mirror because I don't like what I see. This isn't about hips, bumps and lumps. This is about how things in my life are hurting me in so many ways. My appearance, my health, my attitude. I have become a person I am not happy with. So full of doubt, and anger. So Facebook is just the first step in many. Facebook is just the beginning to getting the false friends, bad comments, self doubt in the garbage where it belongs.
Tomorrow is a new day. Tomorrow I start my journey in cleaning up my heart. In doing things that truly make me happy. I have enought pain with the struggles of cystic fibrosis. I have enough pain from the past. I need love, and happiness or I will not survive this journey. I will not survive .
So I raise my imaginary glass ( filled with something strong I am sure....lol) to the heavens. I raise a cheer...."Here is to a new day". And to my friends, and family.....have patience with me, I will survive.
And to my God.....forgive me please. I have strayed.

Friday, April 15, 2011

Sickness and faith

I often get asked "How do you do this?"meaning how do I tolerate all that this family has to go through in our walk with cystic fibrosis. Well I often respond "I don't do it alone!" Now this may have different meanings to different people. Some  may think "Wow she has a great husband" or "She must have a really supportive family", possibly "She must have an amazing set of friends" or better yet "She has total faith in the Lord" All of these statements would be 100% true on any given day. But the statement that hits my heart the strongest is, she has total faith in the Lord. Given that the other statements are true, but what good are these statements without God. My husband, family and friends are wonderful, but they are only human. Even the best of humanity will collapse under stress. My Lord always holds true. I am like any Christian struggling with their faith. There are days when my faith is so strong. There are days when I question my faith and belief, but then the Lord sends a gentle reminder of his powers. I guess you could say on those days I feel like I have been smacked up side the head with a brick. Mind you the masonry did it with love.
Our family will continue to struggle with our health. We will continue to grow in our walk with Christ. Life's issues will be given unto him, and I will follow his path.
So to all who wonder how I do it ? I have no idea, but through him I have found the way.

Annika is healing fine. She is tolerating food great, and is starting to get her appetite back. She kicked her brother off the couch yesterday, so my sassy diva is back. God is good!

Monday, April 11, 2011

The big day has come

Well anyone who knows us, knows that we have been waiting forever to correct Annika's ENT (ears, nose, throat) issue's. Well the big day has come. This morning she came out of tonsil, adenoid, and sinus surgery. She woke up, not a happy camper mind you. She has been running a low grade fever, and her uvula is very swollen. Also her sinuses are bleeding, so it is just dripping down her throat. hopefully we can get it under control soon. Also she has been having lower right side pain. She has been experiencing this off and on for the last 4 weeks, but this is the first time she started screaming in the presence of a doctor. Perfect timing, so the doctor ordered a ultrasound. She is sleeping right now because of the blessed morphine. I will continue to update. Hugs to all. We are in room 3222.

Tuesday, February 01, 2011

Bucket! I said bucket!

All this in and out of the hospital trips with Annika and I over the last month has got me thinking. I have never made a wish list, or as us older cfers know it as a bucket list. Don't get me wrong, I don't think this recent surgery and ongoing abscess/infection is going to be the death of me. But since I have spent a lot of time recently staring at the same four walls. So here it goes. I must warn you it is not a "normal" bucket list
Things I would like to do, or places I would like to see before I kick the bucket:
1. Dive the great barrier reef with my son
2. Hot air balloon ride
3. Sky dive
4. Walk on part on "The Walking Dead" This would satisfy my sickening love for all thing zombies
5. Investigate with Josh Gates on Destination Truth
6. Investigate with the paranormal, such as Ghost Hunters or Ghost Lab
7. Own a horse
8. Get a full stomach panel tattoo
9. See the pyramids
10. Swim in all the oceans( except the polar ones)a toe dip would do. I have swam in the Atlantic as of date.
11. Visit an active volcano, like in Hawaii
12. Watch both my children grow old enough, get married and be happy.
13. Hold my first grandchild
14.Meet my favourite author Dean R Kootnz
15. Visit a long lost friend (relative) in Germany. You know who you are.
16. Swim with dolphins
17. Catch a fish that weighs more than me.....lol.
18. Travel to all the provinces in Canada with my family.

So this is the good old stand in. Each year I add a few. I hope to soon scratch off a few. Realistic thoughts tell me I may be able to scratch off half of these. Let's pray to God , with the connections, friends and family I have. I can scratch them all off. So if you can hook me up????

Tuesday, January 11, 2011

Gallbladder gone, SLOWLY HEALING, did I say slowly?

OK so for the full story. I went into Leamington ER the morning of the 29th. I had woke up, or should I have said never went to sleep that night. I had been puking on and off since the 24th of December. We all knew Christmas kinda bit the big one, well it was looking like New Year's would suck too! After examining me and doing several tests, the doctor advised me that I had an infection in my stomach perineum and my gallbladder needed to come out way before my scheduled surgery date on the 21st. The surgeon Dr.Tracy came to see me and told me she scheduled me in at 8am tomorrow, Jan 31st. All that happened after that was a whirlwind. Crazy I must admit. The next thing I remember is talking to the nurses in the OR, and than waking up with no gallbladder. Wild! The bad news was the doctor couldn't remove it laproscopic. There was too much scar tissue from my bowel resection. So I wake up with four staples at my navel, and just under my right breast I now had a Frankenstein like scar with 9 staples spaced half a centimeter apart. And alot of pain. They had me on Cipro....which made me puke horribly. Flagyl, dilaudid and and anti nausea medicine. I was bed ridden for 3 days. My blood pressure was 85 /45.....yep you are reading right. So to say the least, from that point on I realised this was going to be a slow go. By Tuesday my doctor was away at a marathon, and the new doctor discharged me, even though I was complaining of severe pain and nausea. Come this weekend I was still feeling horrible. The fever kicked in Monday, and so did the puking. My wound was leaking a yellowish green from the left side, and smart me was doing saline soaks to help the infection to come out. I called my family doctor, because my surgeon isn't back until Thursday. I will be seeing her at 1:30 pm. Today I saw my family doctor. I have an infection in the wound, so I have been put on Keflex.He told me it was good I was doing the saline soaks, or he stated it would probably be much worst! I also have a UTI, so the Keflex will cover that also. I am on Diflucan for thrush on both ends( ahh gotta love antibiotics and being a woman!)and still on pain killers until I heal up. Grrr this is so frustrating. So to all my friends who have been calling or emailing. Thank you for your love. It really was shocking opening my email after 5 days of ignoring it and having to go through almost 100 get wells. I truly am a blessed woman! To my friends who have managed to visit and bring over goodies. Love you a bunch. I will keep you all posted as I know more.
Annika is doing well. THANK GOD! no infections right now, and we are just waiting to here from her ENT for a cancellation for her tonsils, if there are no cancellations than she will have her tonsils out April 11th. Dave is stressed because of the situation and Parker is being a great little man. He comes home everyday and tells me how his schooling is going. He and Annika come into the bedroom to check on me often, and they are honestly trying to be on their best behaviour. To be continued......